Palliative Care Sources for your Essay

Palliative Care and Communication User,


The UK government has established a Commission on Patient and Public Involvement for the NHS, headed by a 'participation czar'. In 2003, the government established a major NHS consultation - Choice, Responsiveness and Equity in the NHS and Social Care - which placed a specific emphasis on patient and user involvement and which directly involved service users in eight officially appointed task groups, including one focusing on long-term conditions, which addressed palliative care issues (Aday, 2005)

Palliative Care and Communication User,


Should intervention models change in duration, intensity and complexity? Increasingly, studies have concluded that recovering from grief is often a longer and more varied process for both children and adults than is commonly understood in western culture. With adequate resources and social support, the majority of bereaved children demonstrate few negative mental health outcomes in the short run - 14 months to 2 years after the death of a parent (Beach, et al

Palliative Care and Communication User,


For some it may mean having little time and feeling weak and very ill; for others, coping with loss and perhaps the prospect of loneliness and isolation. It would not be surprising if workers and agencies were reluctant to place additional burdens on service users who can already be seen to have other difficulties and preoccupations (Baarsen & Broese van Groenou, 2001)

Palliative Care and Communication User,


It is helpful to recognize that they are not new issues, but have frequently been identified and applied to many groups and individuals. Such concerns have often been associated with traditions of 'protecting' (vulnerable) service users, issues of 'gate keeping' by service providers and paternalistic health and welfare cultures (Brownell, 2006)

Palliative Care and Communication User,


Nevertheless, it can be argued that hospice and palliative care have been slow to address 'user involvement'. Except for the development of patient satisfaction surveys, whose helpfulness as a form of user involvement is open to question, it was not until the late 1990s that user involvement really emerged as an issue in palliative care, with the beginning of public discussion, organized events, publications and the commissioning of research (Chadiha, 2000)

Palliative Care and Communication User,


It has historically placed an emphasis on 'voice and choice', concepts which have subsequently gained a prominent place in the health and care lexicon. As one of the founding figures of the hospice movement, Dame Cicely Saunders said that one of its principal and explicit aims was to provide a 'voice for the voiceless' (Henry, et al

Palliative Care and Communication User,


The Calman Hine Report in 1995 paved the way for user involvement in palliative care by recommending that cancer ser- vices should be patient-centered (Department of Health 1995). The National Health Service Cancer Plan (Ramsey & Blieszner, 1999) encourages user involvement in the context of recognizing the quality of cancer services as a national priority

Palliative Care and Communication User,


This has frequently been the case in relation to people with learning difficulties, particularly those seen as having 'profound' or 'multiple handicaps' or who did not communicate verbally. But there are few groups this has not been raised in relation to during the course of the modern development of participation policy and practice, including children and young people, mental health service users / survivors and others who have experienced long-term institutionalization (Wu & Schimmele, 2005)

Palliative Care and Communication User,


2005). However, three studies have reported an increase in children's symptoms and problem behaviors after two years, highlighting the need for longer- term research to understand more fully possible delayed reactions and the influence of loss on children's functioning over the course of development (Yorgason, et al

Palliative Care and Communication User,


This led to the establishment of a User Involvement Panel, hosted by Help the Hospices and composed of palliative care service users and others. The Panel developed and ran a series of educational regional seminars on user involvement, culminating in the first national conference on this subject held in 2003 (Zink, et al

Spirituality for Palliative Care Patients


.Spirituality speaks to our desire to make sense of our world and find our place in it" (Bogin 2000)

Spirituality for Palliative Care Patients


In addition, they noted that the issues had been "woefully underaddressed" by researchers, proposing that there were several areas of investigation still left untouched, despite abundant anecdotal evidence in the same areas. Those areas are: "the religious and spiritual needs of people of different religions, the positive and negative effects of religion and spirituality in palliative and end-of-life care, and the contributions that religious and spiritual institutions as well as health care professionals can make to such endeavors" (Cohen and Koenig 2002)

Spirituality for Palliative Care Patients


.A religious or spiritual history is best obtained during a comprehensive medical evaluation, introduced naturally as part of the social history" (Koenig 2001)

Spirituality for Palliative Care Patients


Also mentioned is the Eastern philosophies' path of engaging in "meditation or altered states associated with religious ecstasy and/or shamanic journeying" (2000). "Spiritual care for the Christian includes only those approaches that will deepen and enhance a person's relationship with God," and that include "worship, compassionate presence, prayer, Bible reading, music, love and support" (Meyer 2000)

Spirituality for Palliative Care Patients


Indeed, I argue that health care truly exists only when community and spirituality are allowed to flourish, for community and spirituality are the most fundamental modes of humanity in dealing with brokenness, pain, suffering, and death." Soggie's experience as a psychotherapist dealing with terminal patients gave him some insight; some he borrowed from the great psychologist Carl Jung, who pointed out that "the deepest and most human psychological function is spirituality" (Soggie 2003)

Palliative Care Nursing


Comfort as ease or contentment is also achieved if a patient experiences anxiety and the cause is effectively addressed. And comfort as transcendence is achieved if the patient is able to bear or overcome challenges (Kolcaba)

Palliative Care Nursing


Nurses must assist these family caregivers go through and survive these transitions (Rose & Lopez). Typology of Journeys Theory The lack of services and physicians' failure to inform patients and families about it deprive the latter of the chance to obtain palliative care (Lyles et al

Palliative Care Nursing


This theoretical structure is quite capable of directing the work and thought of healthcare providers. The theory says that when the healthcare needs of a patient are correctly identified and appropriate nursing interventions are used to respond to these needs, the result enhances his comfort (March, 2009)

Palliative Care Nursing


The Middle-Range Theory of Transitions Afaf I. Meleis created this theory, which provides transitions to guide anticipated interventions for older adults with dementia and their caregivers (Rose & Lopez, 2012)

Palliative Care Nurse Minimizing Psychological


In each case, patients at the end of life and their families will depend on expert nursing care to meet their needs." (Ferrell and Coyle, 2002) Presently, the world's population is comprised of more elderly individuals than every before in history and because of this fact, palliative care must focus upon not only end-of-life care for trauma victims and those with terminal disease if health care is to fulfill the very important task to ensuring the best quality of life for the patient